In addition to our live virtual community events, Tyrosinemia Connections, we have implemented two new nutrition support programs to help the HT-1 community in these unprecedented times.
- Assistance for patients in adherence to the nutrition plan designed and established by your clinic’s doctor or RD protocol – the Patient Nutrition Program 1
Support for RDs in their understanding of Hereditary Tyrosinemia Type 1 (HT-1) nutritional management – Tyrosinemia 1:1 Dietitian Support2
Both these programs recognize the critical role of a carefully tailored low-protein diet in a complete treatment plan for patients with HT-1, delivered by Registered Dietitians/Nutritionists (RDs) and supported by organizations such as AND, GMDI and SIMD.
Both these programs do not add, change, replace or eliminate the nutrition plan given by the doctor or RD.
Patient Nutrition Program
We understand that it can be challenging for patients to retain the nutrition information received during clinic visits and calls. By working with your clinic’s dietitian to only reinforce the nutrition plan created by the doctor or RD, our new Patient Nutrition Program aims to overcome some of the challenges and, with their consent, help your patients and their families to meet the nutrition goals designed by the doctor and/or RD.
The sessions will be led by Angela Kurtz, MS, RD, CDN (Clinical Metabolic Director), and will include discussion topics tailored to meet your patient’s individual nutrition goals designed by your team and will be shared in advance. The discussion will be delivered through 30-minute telephone or video calls with patients and/or caregivers, with the overall goal of supporting the nutrition care designed and delivered by your clinic. This program is available to patients undergoing treatment with a low protein diet and NITYR® (nitisinone) Tablets.
In addition, we have extended the Patient Nutrition Program to commercially insured patients on the 30-Day Free NITYR Program3 , where patients can try the NITYR Experience without interruptions to their current nitisinone medication.
Please do discuss within your clinic if the Patient Nutrition Program is well-suited to any of your patients with HT-1.
Tyrosinemia 1:1 Dietitian Support
Furthermore, we are introducing Tyrosinemia 1:1 Dietitian Support to provide specialized dietitians with a resource to address this rare disorder and further advance understanding of HT-1 nutritional management.
This product support is designed for all Registered Dietitians/Nutritionists who have become metabolic dietitians in the past two years, or those who have not treated a patient with HT-1 before, provided through telephone or video calls.
Find out more about the 30-Day Free NITYR Program here. To find out more information about the Patient Nutrition Program or Tyrosinemia 1:1 Dietitian Support contact Angela Kurtz at 1-646-234-7576 or email Angela.Kurtz@cyclepharma.com.
1. Patient Nutrition Program: Subject to terms and conditions and eligibility criteria. This program is for patients with a valid prescription for NITYR issued by their physician or other HCP, or commercially insured patients on the 30-Day Free NITYR Program, and is subject to other federal and state law. Terms, conditions and eligibility criteria are available at www.nityr.us/offerstcs. 2. Tyrosinemia 1:1 Dietitian Support: Subject to terms and conditions and eligibility criteria. This program is for registered dietitians and nutritionists who have become metabolic dietitians in the past two years or have not treated a patient with HT-1 before, and is subject to other federal and state law. Terms, conditions and eligibility criteria are available at www.nityr.us/offerstcs. 3. 30-Day Free NITYR Program: Patients can try NITYR for 30 days, one time, for free, as long as their doctor prescribes it. Subject to terms and conditions, eligibility criteria, and other federal and state law. Terms and Conditions and eligibility criteria are available at www.nityr.us/offerstcs.