* Patients can try NITYR for three weeks for free as long as their doctor prescribes it. Subject to terms and conditions, eligibility criteria, and to other federal and state law.

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* For eligible commercially insured patients. Doctor’s prescription required. Subject to terms and conditions and eligibility criteria. Program not available for government-insured patients and subject to other federal and state law.

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My Story with NITYR

My son was really excited to be able to swallow the medication

Five-year-old Ethan has hereditary tyrosinemia type 1 (HT-1). Like any family that has a child with this ultra rare condition, the family have found Ethan’s diet and medication regime very demanding.

Ethan started on Orfadin* (nitisinone) capsules as a baby, which his parents had to mix with water to create a suspension to syringe into his mouth. The medication, nitisinone, sometimes known as NTBC, needed to be kept in a refrigerator, which the busy family found restricting, as it meant carrying ice packs around when travelling even short distances.

Find out more about the family’s experience by watching the video or read more below.

Convenient to use

When Ethan’s parents, Carrie and Mike, heard that NITYR was bioequivalent1 to Ethan’s current medication Orfadin*, but had some advantages that may be more convenient to them, they wanted to know more.

When we signed up for the 21-day NITYR Free Trial Offer2, it was really quick and easy,” says Carrie. “It would make transportation and travel easier for our family and, hopefully, it was something that our son would be excited about – and he was.

Ethan’s dietician encouraged the family to look into NITYR, as she felt he was ready to swallow a tablet. The small size of the NITYR tablet would be perfect for this.

What I like about NITYR is it’s a really small3 tablet,” says Carrie. “It comes in the size of baby aspirin, and it can be taken with or without food any time of day. It doesn’t need to be refrigerated4.

Swallowing whole tablets

Ethan was soon able to swallow the small NITYR tablets without any trouble at all. Like Carrie and Mike, parents of young children should always consult a healthcare professional before getting their child to attempt to swallow a tablet.

My son was really excited to be able to swallow the medication,” says Carrie. “He shows everyone that comes over how big he is, when he gets to take his medication with water. He asks for a crowd! He’s really proud of himself. He feels like a big boy, really independent.

Financial help for medical nutrition

The NITYR Three-Week Free Trial Offer comes with other benefits too – eligible families get a $200 coupon to spend with Cambrooke Therapeutics™, which is a specialist provider of medical nutrition. This gives access to formulas made from laboratory-formulated proteins that HT-1 patients can digest, as well as low protein versions of everyday foods.

Eligible patients moving to NITYR on a permanent basis can join the NITYR Diet and Low Protein Program5, which means they continue to get the $200 monthly contribution to spend with Cambrooke Therapeutics for two years – this represents a saving of up to $2400 per year.

What I really like about the NITYR program is the $200 monthly contribution to Cambrooke Therapeutics food," Carrie explains. "It allows us flexibility to order medical foods for our child, who cannot eat a high-protein diet.There are very few foods on the market that are available to kids with tyrosinemia, and this allows him to have access to pasta, rice, ravioli, pizza – all low protein – and it saves our family a lot of financial burden.

Carrie and Mike have a message for other families who are considering moving to NITYR.

For a family that’s unsure about switching to NITYR, I think I simply would say just give it a try. There is nothing to lose, you have everything to gain,” says Mike. “I think it’s important for caregivers to be open to innovation, because we are such a small community that we don’t always get the attention as some other conditions.

"I would tell a new family not to be afraid and to give it a try," adds Carrie. "It was a really positive experience for my son.

1 Data on file NIT/02/17 2 Free Trial Offer: Subject to terms and conditions and eligibility criteria. Eligible patients can try NITYR (nitisinone) tablets for 21 days for free as long as their doctor prescribes it. Subject to other federal and state law. Cambrooke Therapeutics is a registered trademark of Cambrooke Therapeutics, Inc. 3 Data on file NIT/03/18 4 Data on file NIT/01/17 5 Diet and Low Protein Food Program: Subject to terms and conditions and eligibility criteria. This program is for eligible commercially insured patients only. Not available for government-insured patients and subject to other federal and state law.

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