Helping Infants and Young Children with HT-1 Thrive
We understand the many challenges of living with HT-1, but administering nitisinone (NTBC) should not be one of them.
For this reason, NITYR (nitisinone) tablets come in very small1 (baby aspirin sized) and convenient 2 mg, 5 mg, and 10 mg tablets. These tablets can be converted to a tasteless suspension for administration to a younger child via oral syringe, or they can be crushed and added to applesauce (oral syringes and tablet crushers are available for free from the NITYR Patient Support Program). The tablets can be easily disintegrated in an oral syringe and the preparation can be kept in the syringe for up to 24 hours, giving you plenty of time to decide when is the right time to give the medication to your child. NITYR has a 36-month (3 year) shelf life and can be stored at room temperature2.
What I like about NITYR is it’s a really small tablet,” says Carrie. “It comes in the size of baby aspirin, and it can be taken with or without food any time of day. It doesn’t need to be refrigerated.
Carrie - Mother of Ethan, 5 yr old NITYR patient
Administration using an oral syringe
Designed for Convenience
With your help, your child can lead a full life. With NITYR there is one less thing for you to worry about. If your child is newly diagnosed with HT-1, talk with your healthcare professional about all your treatment options.
NITYR is also stable at room temperature between 68° to 77°F (20° to 25°C), allowing for excursions between 59° and 86°F (15° and 30°C) until its expiry date, freeing you from having to refrigerate the medication. It also has a shelf live of 36 months (3 years). The new formulation can also be taken with or without food, another advantage for families facing vigilant mealtimes every day. A $0 co-pay is also available for eligible commercially insured patients3.
For a family that’s unsure about switching to NITYR, I think I simply would say just give it a try. There is nothing to lose, you have everything to gain,” says Mike. “I think it’s important for caregivers to be open to innovation, because we are such a small community that we don’t always get the attention as some other conditions." "I would tell a new family not to be afraid and to give it a try," adds Carrie. "It was a really positive experience for my son.
Mike and Carrie - parents of Ethan, 5 yr old NITYR patient
1 Data on file NIT/03/18 2 Data on file NIT/01/17 2 $0 co-pay for eligible commercially insured patients (up to $15,000 per year per patient).