Hereditary tyrosinemia (HT-1) is a rare disorder, so reputable sources of information and guidance may feel limited at times. For this reason, we provide additional information on our website, as well as the NITYR Patient Support Program.
You can contact the NITYR Patient Support Program any time you have questions or concerns, 24/7, just call 1-800-847-8714.
HT-1 advocacy and support groups can be a great resource for information and interacting with others affected by this condition. Just make sure you’re seeking information and help from a reputable source online. Cycle Pharmaceuticals can put you in touch with HT-1 patient advocacy groups such as the Network of Tyrosinemia Advocates (NOTA), the National Organization for Rare Diseases (NORD) and provide you with other sources of information.
Many patients and families find support when they connect with others affected by HT-1. Many have faced the same challenges you have, and this community may offer guidance, recommend clinicians and coping strategies that work well for their families. When families communicate, they feel less isolated and more empowered to take control of living with HT-1.
NOTA also maintains a Facebook group to connect and support people affected by tyrosinemia.
When you’re ready to learn more about NITYR and the advantages this new medication offers HT-1 patients, call our NITYR Patient Support Team on 1-800-847-8714, or speak to your healthcare professional.