Many parents report feeling overwhelmed when their child is diagnosed with hereditary tyrosinemia (HT-1). If your child is newly diagnosed with HT-1, talk with your healthcare professional about all your treatment options. With your help, your child can lead a full life. And with NITYR there is one less thing for you to worry about.
If you are considering NITYR, speak to your HCP, your dietitian or your clinic today – you don’t need to wait until your next appointment. To help you get the most out of the discussion, we’ve gathered some common questions to ask your HCP. Simply download the guide here.
What I like about NITYR is it’s a really small1 tablet,” says Carrie. “It comes in the size of baby aspirin, and it can be taken with or without food any time of day. It doesn’t need to be refrigerated2. My son was really excited to be able to swallow the medication,” says Carrie. “He shows everyone that comes over how big he is, when he gets to take his medication with water. He asks for a crowd! He’s really proud of himself. He feels like a big boy, really independent.
Carrie - Mother of Ethan, 5 yr old NITYR patient
NITYR is formulated aiming for convenience. Children as young as three years old may be able to swallow NITYR, but for those infants unable to swallow a tablet, NITYR can be used to create a tasteless suspension. The suspension can be administered via oral syringe and is a simple and clean process, which might make your life easier. The tablets can be easily disintegrated in an oral syringe and the preparation can be kept in the syringe for up to 24 hours, giving you plenty of time to decide when is the right time to give the medication to your child.
NITYR is also stable at room temperature between 68° to 77°F (20° to 25°C), allowing for excursions between 59° and 86°F (15° and 30°C), freeing you up from having to refrigerate the medication and reducing the chance of toxic impurities forming. It has a shelf life of 36 months (3 years). To help families facing dietary restrictions every day, the new formulation can also be taken with or without food.
Professional Support When You Need It
Cycle Pharmaceuticals is an ongoing resource for parents and caregivers, and we are here for you every step of the way.
Parents and family members can access our specialized NITYR Patient Support Program. We know that questions sometimes come up during an overnight feed. Our Patient Support Team provides access to a pharmacist to give you the best available advice whenever you need help, 24/7.
We can even offer tips for things like preparing and packing food for a family weekend getaway, for ‘play dates’ or when you plan to leave your child with a babysitter.
1 Data on file NIT/03/18 2 Data on file NIT/01/17